Who's riding again after a blood clot?

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shinobishoryuken
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Who's riding again after a blood clot?

Postby shinobishoryuken » Thu May 31, 2012 14:43 pm

Hi,

Five weeks ago I was diagnosed with a DVT in my calf which ground my training to a halt. I am on the required drugs and now have a full-thigh length compression stocking to aid my recovery.

Has anyone else been through this, or know of any cycling friends or family that have worked around this condition to get back on their bikes?

I have been advised to not exercise yet, to prevent any complications, and to definitely not ride a bike on the roads (or at all) for the next 6 months as I may bleed to death (or internally) if I was struck by a car or fell.

My pain has subsided, but I am desperate to have a gentle spin (indoors on a trainer) but not sure if this is beneficial?

Are there any known complications to DVT sufferers in regard to cycling?

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NapoleonD
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Re: Who's riding again after a blood clot?

Postby NapoleonD » Thu May 31, 2012 15:18 pm

Been riding 4 years since mine. No probs. just make sure I'm hydrated...
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ddmrcp
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Re: Who's riding again after a blood clot?

Postby ddmrcp » Thu May 31, 2012 19:59 pm

If your pain has settled and swellings gone down and your blood thinning med has settled to a therapeutic level it should not be a problem.
Mainly if the swellings gone down completely then thats usually a good indicator that the circulation is going back to normal plus a month is a good time for your body to have started breaking down the clot.
The risk of vigorous exercise is that the clot can dislodge and move within the veins to lodge further up in the body- usually the lungs- causing a pulmonary embolism- but no exercise at all is probably a bit overkill too.
Dont know what your definition of 'gentle spin on turbo' is, but take it in stages. Of course your own doctor is in a better position to answer the questions posed, but good luck.

keef66
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Re: Who's riding again after a blood clot?

Postby keef66 » Fri Jun 01, 2012 12:32 pm

What's going on with you young, fit types developing DVT? I thought it was the exclusive preserve of sedentary, elderly types on long-haul flights :shock:

Brommers76
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Re: Who's riding again after a blood clot?

Postby Brommers76 » Sat Jun 02, 2012 06:41 am

Why no cycling on the road for 6 months? Is that purely down to the Warfarin - or whatever blood thinners you are on? If it is then that doesn't make any sense. I take it you are advised not to drive anywhere in case you have a car accident and bleed to death?

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NapoleonD
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Re: Who's riding again after a blood clot?

Postby NapoleonD » Sat Jun 02, 2012 07:38 am

I was told by the doctor that I was ok to ride after i'd had 6 weeks of warfarin.
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shinobishoryuken
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Re: Who's riding again after a blood clot?

Postby shinobishoryuken » Wed Jun 06, 2012 20:21 pm

To be honest I'm bewildered and fed up with the contradictory advice / non-advice I get from INR clinic staff, doctor, ward staff etc. My GP is bordering on useless and appears to be more naive and uneducated on DVT than I was before i got this.

May I ask those that still ride post-DVT if they did so whilst wearing their compression stockings, or if you took them off for the ride and put them back on afterwards?

Mine are thigh-high and I am now awaiting a new pair / type as they keep falling down and bunching up at the top of my knee.

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cyco2
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Re: Who's riding again after a blood clot?

Postby cyco2 » Thu Jun 07, 2012 09:16 am

If you google 'pulmonary embolism' it may find you as very interesting. My wife died from it. I reckon your doctor has no idea what to advise you and for why? Because they only deal with sedimentary types where gentle exercise would be a step to far. After a prostrate operation I was advised not to drive my car in case of the need for an emergency stop. So I went by bus which was involved in a crash. So, when a Doctor advises something like don't ride your bike ask them to qualify it and analyse it carefully.
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RichK
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Re: Who's riding again after a blood clot?

Postby RichK » Thu Jun 07, 2012 19:39 pm

I had a dvt/pe a year ago. Was told to 'take it easy' for a couple of weeks only but 'gentle' cycling was encouraged. I didnt discuss what they considered gentle (as I suspect it would have been different from our definition).

At a recent blood test, I was advised that I only need to wear stockings when sat still for long periods (& certainly not needed when riding).

brit66
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Re: Who's riding again after a blood clot?

Postby brit66 » Sat Jun 09, 2012 13:27 pm

In the past few months my right calf and even ankle has been swelling up quite noticably, particularly after a day sitting down (office job you see).

I went to the doctor and he basically said you haven't got dvt (which I didn't think I had anyway) but he showed little other interest in what the cause might be.

I suspect it's down to a circulation issue (I noticed a varicose vein pop up in that leg about 18 months ago), but a few weeks off the bike and then regular, moderate-paced cycling doesn't appear to be making these symptoms go away.

Annoying!

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NapoleonD
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Re: Who's riding again after a blood clot?

Postby NapoleonD » Sat Jun 09, 2012 13:47 pm

I only wear compression stockings when I'm going to be still for a long time (flights/long car journey)
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Eddy S
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Re: Who's riding again after a blood clot?

Postby Eddy S » Sat Jun 09, 2012 21:10 pm

I contracted a DVT after shattering my femur at the end of 2010.

I used a Wattbike as part of my rehab and was turning my legs over on it (broken leg and all…) about 6 weeks in.

Don’t wear your compression stockings whilst exercising. How long you wear them post dispersal of the clot will be determined by the level of vein damage caused by the original DVT which can be seen on an ultrasound scan – I was told that I would have to wear mine for at least 2 years when not exercising, being active, etc.

shinobishoryuken
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Re: Who's riding again after a blood clot?

Postby shinobishoryuken » Mon Jun 11, 2012 20:52 pm

Brit66- I initially went to see GP back in December for pain behind my knee in other leg.

I had pain in whole lower left leg which the A&E dept' said was just a sprain even though I could fully move my calf without difficulty. Only going back and demanding some proper tests to be done was I diagnosed with a DVT.
Maybe something to consider if it persists? Drs cant tell by just looking / feeling your legs if you have a DVT (or something completely different).

I suppose my main concern is when did people feel safe enough to attempt to exercise on the bike again?
I dont want to risk the clot breaking up via a sudden increase in blood flow.

Maybe I'm just ultra-paranoid!!

ddmrcp
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Re: Who's riding again after a blood clot?

Postby ddmrcp » Tue Jun 12, 2012 06:21 am

The clot breaking up depends on things like how big it is for example, ( and can occur with any exertion, not just cycling). Also the possibility of it happening is more when you are first diagnosed. Things change once treatment is started- and the body automatically starts to 'clear' the clot.
I suspect if your warfarin has been within range, swellings gone, and you are now a good six weeks or so down the line- you should be ok for exercise and can ramp it up in stages. Good luck

brit66
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Re: Who's riding again after a blood clot?

Postby brit66 » Wed Jun 13, 2012 16:16 pm

shinobishoryuken - yes, I agree, the most cursory of examinations, which culminated in the measuring of both my calf muscles... and that was the diagnosis. This despite all the symptoms pointing to a possible clot - pain, swelling, discolouration of lower leg.

Anyway, I''ll get it checked out properly as you did.

shinobishoryuken
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Re: Who's riding again after a blood clot?

Postby shinobishoryuken » Thu Jul 05, 2012 17:07 pm

Brit66- any news or change to your diagnosis?

For those that are interested, this past week I've done 15-25 mins on indoor spin bike at moderate intensity four times on alternate days. I also braved the busy roads on Saturday and cycled 6 miles.

Any advice on how long to wait before something a bit more like a 20 miler?

Above comments regarding stockings are the polar opposite to what I've been told. I heard that I must wear my thigh length compression stocking at all times ESPECIALLY when exercising / cycling. Obviously frustrating as it creeps down and bunches behind my knee due to muscular contraction.

What's peoples advice on thigh length vs below knee compression? Do below knee stay in place during exercise and everyday activity?

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MarkP80
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Re: Who's riding again after a blood clot?

Postby MarkP80 » Fri Aug 24, 2012 12:42 pm

I've been reading this thread with interest, as last week I was also diagnosed with a DVT in my thigh.

I went to my Dr complaining of pain and swelling in my calf and the first thing she did was start treatment for DVT, booked me in for an ultrasound, even though she said she thought this was an unlikely cause. The ultrasound scan did unfortunately show a clot.

No specific cause has been found for my clot. I have always kept fit but had to stop in Oct 2010 following a relatively bad knee injury (to the other leg). My second and final op was back in January though (ACL reconstruction), so that's outside the timescale for being the culprit apparently. The injury was my initial reason for taking up cycling seriously, and I can't believe how much I'm enjoying it.

So at the moment my bike sits there folornly too. At the moment I struggle to walk more than 100m without my calf really cramping up, so it's probably too early to get back in the saddle. Interestingly I haven't been advised to wear TED stockings, although rather than warfarin injections I've been put on a new tablet treatment (rivaroxaban) - not a new drug but newly approved for treating DVT as a warfarin replacement.

Having read up a little about DVTs and PEs I do feel very fortunate to have had an early and correct diagnosis.

Cheers,
MarkP
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ColinJ
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Re: Who's riding again after a blood clot?

Postby ColinJ » Fri Oct 05, 2012 15:52 pm

I suffered a DVT and a massive PE this summer. I have been on Warfarin for nearly 6 weeks and I can still only walk 250 metres before I run out of breath and my bad leg starts to throb. I am making slow progress, but I think it will probably be the end of the year before I can do any riding again, and at first I will stick to the gym bike.

After my recent near-death experience (3.5 hours unconscious on the floor before I came round and was able to crawl to a phone to get help!), I suggest that you take heed of the warnings about the dangers of DVT! Keep your legs moving when travelling or sat in front of the computer/TV. Keep your weight down, don't overdo the alcohol, eat a healthy balanced diet, and drink plenty of water. Avoid overtight clothing.

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T.M.H.N.E.T
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Re: Who's riding again after a blood clot?

Postby T.M.H.N.E.T » Fri Oct 05, 2012 15:53 pm

ColinJ wrote:I suffered a DVT and a massive PE this summer. I have been on Warfarin for nearly 6 weeks and I can still only walk 250 metres before I run out of breath and my bad leg starts to throb. I am making slow progress, but I think it will probably be the end of the year before I can do any riding again, and at first I will stick to the gym bike.

After my recent near-death experience (3.5 hours unconscious on the floor before I came round and was able to crawl to a phone to get help!), I suggest that you take heed of the warnings about the dangers of DVT! Keep your legs moving when travelling or sat in front of the computer/TV. Keep your weight down, don't overdo the alcohol, eat a healthy balanced diet, and drink plenty of water. Avoid overtight clothing.


And stretch post ride/exercise. Preferably as low to the ground as possible

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ColinJ
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Re: Who's riding again after a blood clot?

Postby ColinJ » Fri Oct 05, 2012 16:47 pm

T.M.H.N.E.T wrote:And stretch post ride/exercise. Preferably as low to the ground as possible

In the context of DVT - how does that help? That's one piece of advice that I hadn't seen before!

I'm putting my legs up on a footstool now whenever watching TV for any length of time, and also when using my laptop (now, f'instance) or tablet rather than sitting at my desk and using my desktop PC. That definitely reduces blood pooling. When I started on the Warfarin, I could only keep my legs down for a few seconds but they were fine up on the stool.


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